I'm a 40-year-old stay-at-home kid — and it isn't so bad

Thanks to my disease, I'll probably live with my mom forever. I'm okay with that.

A woman and a house.
(Image credit: Illustrated | Sylverarts/iStock, Katsiaryna Pleshakova/iStock)

At the start of the second semester of my sophomore year of college, I threw some clothes, books, and a packet of chocolate-chip cookies in a backpack, locked my room on campus, and took the train home, where I moved in with my mom.

Over the previous six months, I'd struggled with extreme exhaustion after performing the most routine actions: sitting through a lecture, cooking a meal, getting out of bed. Every night as I tried to study, my legs and back spasmed in pain. I would try to read the same paragraph over and over, taking in nothing as my eyelids drifted closed. I thought that if I took a couple of weeks off, I might regain my strength. That was 20 years ago. I'm still here.

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Diane Shipley

Diane Shipley is a freelance writer living in the U.K. and covering health and culture for publications on both sides of the pond. Her writing has appeared at The Guardian, Literary Hub, The Washington Post, Decider, Mashable, and more.