Watch Ady Barkan's powerful testimony during the House's Medicare-for-all hearing

Ady Barkan.
(Image credit: AP Photo/J. Scott Applewhite)

Assisted by his computer's text-to-voice program, health-care activist Ady Barkan told the House Rules Committee on Tuesday what his life has been like in the three years since he was diagnosed with ALS, and how much easier it would have been if Medicare-for-all existed.

This was Congress' first-ever hearing on Medicare-for-all; legislation has been introduced by Rep. Pramila Jayapal (D-Wash.), with the House Budget Committee taking up the bill in May, HuffPost reports. Barkan told lawmakers that that even though he has insurance, his family has to pay $9,000 a month for home care. The alternative is "for me to go on Medicare and move into a nursing home, away from my wife and son," he said. They are "cobbling together the money" from family, friends, and supporters across the country, but "this is an absurd way to run a health-care system. GoFundMe is a terrible substitute for smart congressional action."


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Catherine Garcia, The Week US

Catherine Garcia is night editor for TheWeek.com. Her writing and reporting has appeared in Entertainment Weekly and EW.com, The New York Times, The Book of Jezebel, and other publications. A Southern California native, Catherine is a graduate of the University of Redlands and the Columbia University Graduate School of Journalism.