Watch Ady Barkan's powerful testimony during the House's Medicare-for-all hearing

Ady Barkan.
(Image credit: AP Photo/J. Scott Applewhite)

Assisted by his computer's text-to-voice program, health-care activist Ady Barkan told the House Rules Committee on Tuesday what his life has been like in the three years since he was diagnosed with ALS, and how much easier it would have been if Medicare-for-all existed.

This was Congress' first-ever hearing on Medicare-for-all; legislation has been introduced by Rep. Pramila Jayapal (D-Wash.), with the House Budget Committee taking up the bill in May, HuffPost reports. Barkan told lawmakers that that even though he has insurance, his family has to pay $9,000 a month for home care. The alternative is "for me to go on Medicare and move into a nursing home, away from my wife and son," he said. They are "cobbling together the money" from family, friends, and supporters across the country, but "this is an absurd way to run a health-care system. GoFundMe is a terrible substitute for smart congressional action."


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Catherine Garcia, The Week US

Catherine Garcia has worked as a senior writer at The Week since 2014. Her writing and reporting have appeared in Entertainment Weekly, The New York Times, Wirecutter, NBC News and "The Book of Jezebel," among others. She's a graduate of the University of Redlands and the Columbia University Graduate School of Journalism.