The dark side of the contraceptive coil

Study linking hormonal IUD to increased breast cancer risk adds to growing concerns about the coil

Photo collage of an X-ray of a woman's pelvis, and an IUD tearing a hole through it
Some women have resorted to dangerous self-removal of their IUDs in the absence of available appointments
(Image credit: Illustration by Julia Wytrazek / Getty Images)

Hormonal coils have become increasingly popular in recent years, but a recent study found an unexpected association between the hormonal coil and an increased risk of breast cancer.

Although the cancer risk unearthed by the study, published last week in the journal Jama, was low overall, and extremely low for women under 30, the negative headlines are the latest example of a slew of bad PR around the contraceptive coil.

'Highly unexpected'

Hormonal coils, which release low levels of hormones into the body, are one of two types of contraceptive intrauterine device (IUD). The other is the so-called "copper" coil, which doesn't release hormones into the body.

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Researchers compared nearly 80,000 women in Denmark between the age of 15 and 49 who had used hormonal coil for five years, with the same number of similar women without the coil. Those with the coil had a 40% higher chance of developing breast cancer, said The New York Times.

The oral contraceptive pill has long been known to have a similar risk factor – but the assumption had always been that the coil would not increase the risk, because of the lower levels of hormones released. The results are "highly unexpected", Dr Channa Jayasena, from Imperial College London, told The Independent.

And they need to be taken "seriously", especially among women over 30, when the risk of breast cancer increases, said Lina Morch, from the Danish Cancer Institute, who led the study.

'Consistently underestimated' pain

More than three-quarters of women find getting a coil fitted moderately or severely painful, a study in the Journal of Family Planning and Reproductive Health Care found. Research has long shown that doctors severely underestimate the pain of insertion.

"Sometimes I joke that if men were having this procedure, it would be done under general anaesthesia," Jessica Horwitz, from the US women's health care clinic Tia, told Cosmopolitan. But "many (if not most) doctors still tell patients that IUD insertion involves just 'some discomfort'".

The NHS advises that extra pain relief should be available on request. But this is "not always the case", said Elle, and many clinics and GP practices do not offer local anaesthetic. "'Come with me to get an IUD' has become a popular format" on TikTok – and it's "hardly surprising", given that women's pain has "consistently been underestimated".

Desperate times, DIY measures

More than a million women in the UK have a coil, and about 45,000 are fitted every year. Waiting lists for gynaecological procedures have increased by 60% since pre-pandemic levels, with the average waiting time for fitting or removing the coil on the NHS now ranging from four weeks to more than 12, said Mail Online.

The situation is exacerbated by the fact that some GP surgeries have stopped fitting or removing coils as training doctors to do so is "both lengthy and expensive", and many sexual health clinics have closed due to funding cuts.

Now, experts are pointing to the growing number of women who, without any alternative, "feel forced to remove their own coils", with the "DIY IUD removal" trend taking off on TikTok over the past few years. Doctors warn that removing the coil yourself can damage the cervix or uterus, and risks severe pain, heavy bleeding and infection – even cervical shock and pelvic disease.

"We know that many women are having to wait too long to have a coil fitted or removed, which is simply unacceptable," said Geeta Kumar, vice-president of the Royal College of Obstetricians and Gynaecologists . "The new government must address this issue by investing in time for GPs to undergo training on fitting coils."

Harriet Marsden is a writer for The Week, mostly covering UK and global news and politics. Before joining the site, she was a freelance journalist for seven years, specialising in social affairs, gender equality and culture. She worked for The Guardian, The Times and The Independent, and regularly contributed articles to The Sunday Times, The Telegraph, The New Statesman, Tortoise Media and Metro, as well as appearing on BBC Radio London, Times Radio and “Woman’s Hour”. She has a master’s in international journalism from City University, London, and was awarded the "journalist-at-large" fellowship by the Local Trust charity in 2021.